Thursday, December 29, 2011

Hard Pressed but Not Crushed

(this is a crosspost from my new blog. I'd be happy to give any of my readers here access--it is a private blog--just leave a comment here with your email address and I will add you to the access list) 

Hard to believe I am starting a new blog, but, I think this will be the simplest way to keep people up to speed on the latest. I know many of you want more information, so hopefully this will be a place to find it.

So what's happened? The week after Mark and I ran the Seattle half marathon (Nov. 27th), Mark found a lump on his neck. We assumed it was a swollen lymph node, which it was. Swollen lymph nodes can be caused by numerous things: bacterial infections, mono, viruses, TB or lymphoma. Mark was not sick nor had any symptoms that pointed to anything. He saw a specialist the week of December 5th, and he took a needle biopsy to determine if the swollen lymph node was a result of a metastasized cancer from the thyroid or another area of the body. He also started on a round of antibiotics in case it was an infection. We were sure it was just an infection. The needle biopsy came back showing that there were atypical cells, but that there were no signs of metastasized malignancy, but the Dr. wanted to surgically remove the node so that the diagnosis was more conclusive. We took this to mean that there was no cancer at all (it was nice to assume that for two weeks because we didn't worry much). On December 20th, Mark had the enlarged lymph node removed under general anesthesia. We received word the next day that the diagnosis was pointing toward Classical Hodgkin's Lymphoma. We were shocked, but oddly calm about it.

Mark identified a wonderful oncologist, who will be managing his care. The next steps are to identify the stage of his lymphoma and determine the course of treatment. He has a PET scan this afternoon at 2pm to determine if and where the cancer has spread. We are praying that it is localized in the one area of nodes where the enlarged node was found. Tomorrow we will meet with a different oncologist since our regular guy is on vacation, to (we hope) find out the results of the PET scan and see what Mark's options for treatment are. If it is early stage (I or II) then it will likely be a combination of chemotherapy and radiation. If it is later stage, it will probably be chemotherapy alone. Though I can speculate about the length of treatment based on what I've read, I will spare you all my speculations since we should know much more tomorrow and I can update you then.

Fortunately, Hodgkin's is a very treatable, even curable cancer. With very high survival rates, we are hopeful that we will make it through this journey together and come out better on the other side of it. We know it is going to be a very rough year for us--it sort of feels like we are about to start an IronMan without any training. We are so thankful for the outpouring of support, prayers, encouragement, offers for help and more over the last week. We will definitely need help once Mark starts treatment and we figure out what those needs are. I will likely post  a link to a calendar of our needs here on this blog later on.

Emotionally, this has been a rollercoaster for us already. Some days we feel very hopeful, other days I feel like I've been punched in the stomach all day. It's all part of processing this, and I'm grateful that I'm allowing myself to do that--so that I can better support Mark as his primary caregiver down the road.

For now, please pray and/or hope that it's stage I or II.

I won't be updating this blog with daily news about Mark since I have the other blog for that purpose. So, if you want to follow along with our journey with cancer, please let me know by commenting or sending me an email so I can add you to the access list. I will however, be posting some pictures of the kids from December, because even though it was a roller coaster, there were some definite highs to help balance out the low-lows.

18 comments:

Kelly said...

LOVE you.

Gina B said...

Sarah and Mark- so sorry to hear about this. Your family inspires us everyday and I know getting through this together will just add to the reasons we admire you. If you don't mind Sean and I would definitely appreciate being added to the list to stay updated. Thanks, and please let us know what we can do from the east coast to support you...

Anonymous said...

I don't know your family personally, but I have been reading your blog for a while now. I'll be praying for your family.
If possible, I would like to be added to the access list for the new blog, but understand if you want to keep it private for family and friends.
christinemariebarry@gmail.com

Mama Papaya said...

Oh, Sarah. Know that I am thinking of your family today, as I will be every day until what currently lies before Mark is long behind him. I carry your family in my heart, Sarah. You will never be without someone's thoughts on this journey.

Sharon @ Texas to Ethiopia said...

Wow. So sorry to hear the bad news, but glad and hopeful for you about the type of lymphoma that it is. How wonderful to catch it so early on.

Me. Us. She. said...

Oh Sarah, I'm so sorry that this must be a very scary time for you. I'd love to follow the other blog. atthewatershed at gmail dot com.

Thanks! (Amanda)

whitney and nathan: said...

We would love to check in on the new blog as well, so we can be praying along with you. I don't know what else to say, my heart hurts for your family.

whitney and nathan: said...

We would love to check in on the new blog as well, so we can be praying along with you. I don't know what else to say, my heart hurts for your family.

Rachel said...

Oh, So sorry to hear the bad news! I am praying for you!

I would really like to read your new blog! My email adrress is:
rebeka.zorec@gmail.com

Ellen said...

Dear Sarah and Mark, I am praying for your healing...I have loved reading your blog and the adventures of your family. Please add me to access of your new blog with updates of Mark's progress and treatment. You continue to be an inspiration. Love and peace to your family.

Anna said...

Can you add me, Sarah? Thanks - annabragdon@yahoo.com. Lots of love to everyone. Looking forward to seeing you all happy and healthy in the New Year!!

_ said...

I'd like to follow along on this new journey. Zehlahlum@gmail.com You are all in my prayers!

Shauna said...

I'm so sorry to hear about this news... I'd love to follow your other blog, if you don't mind - shaunasinclair1@comcast.net

Sarah & Daniel said...

So so sorry to hear about this news. I used to follow an adoption blog and still look at it occasionally: http://gossettadoption.blogspot.com(Our Journey as Family). She was diagnosed with Hodgkins Lymphoma in Oct 2009. The first post about her diagnosis is Oct. 30th 2009. I know they had a private blog to keep family and friends updated and that might have more detailed information about their journey. Just thought that might be helpful for you guys to see/read someone else's journey through this. I'd be interested in checking your other blog for updates if your comfortable with that. You and your family will be in my thoughts and prayers.

Sarah & Daniel said...

So so sorry to hear about this news. I used to follow an adoption blog and still look at it occasionally: http://gossettadoption.blogspot.com(Our Journey as Family). She was diagnosed with Hodgkins Lymphoma in Oct 2009. The first post about her diagnosis is Oct. 30th 2009. I know they had a private blog to keep family and friends updated and that might have more detailed information about their journey. Just thought that might be helpful for you guys to see/read someone else's journey through this. I'd be interested in checking your other blog for updates if your comfortable with that. You and your family will be in my thoughts and prayers.

Arika said...

Praying for your family! I was introduced to your blog by Kelly Rees and I'd love to follow your new one as well! rikah_1823@hotmail.com

Kelly said...

I've been following your blog for a while and was so sorry to hear this news. If you don't mind, I'd like to follow the new blog. Your family is in my prayers.

keller7@gmail.com

The Wade Family said...

Wow! So sad to hear about this news. I will be praying for Mark and your family. We would love to be added to the other blog list to follow your journey and know better how we can pray for you guys. ryanandtrinawade@hotmail.com.